Into the Head of the Lion

16 Mar

When my youngest was born with multiple midline birth defects, I remember how helpless I felt when doctors told me that they had no idea what her future might look like. The spectrum of kids with her disorder (Agenesis of the Corpus Collosum + tetraology of fallot + other midline defects) was too broad to venture a guess.

As a parent, it might be one of the toughest challenges….knowing just where that bar a achievement should be placed….Hubs and I always try to err on raising the bar, vs. lowering it.

So far, the public school system has been the perfect compliment to our philosophy….they let us choose the path for our daughter’s education….

For example, when she was about to enter Kindergarten, we had three choices : a) a half day special needs kindergarten b)a half day regular mainstreamed kindergarten c) a full day comprised of half a day of regular kindergarten and half a day of special needs kindergarten. We chose the latter of the three and it suited her well. Our daughter is high functioning on the social scale, yet scores low on all IQ and aptitude tests.

She has blossomed as a young lady and is now in the 5th grade. We are weighing our options for her middle school years. I am not sure what the future holds for our daughter, but I’ll keep you informed. So far, I’m afraid they are going to lower the bar for her and place her in a learning center for challenged kids. My gut tells me this is the wrong decision, but I remain open minded until I actually tour the facility and make the decision for myelf.

The IEP team wants to perform a new battery of IQ an aptitude tests on her, including the famed Wechsler IQ test. It occurs to me that this might not be the best measurement of her IQ, because it is a test that will be administered “cold” by people who do not know her, and do not really understand how she learns/comprehends/communicates.


I know for a fact that the public schools dedicate much time to the concept of test taking skills. This is understandable, since the measure of a school seems to be directly correlated to test scores. Even in my childhood I remember taking moch CTBS tests and learning the basic concepts of this brand of multiple choice testing….these days, because written testing has been imlemented, you can see kids taking focusing similar energies towards competency on written tests, vs. writing skills.

I don’t pretend to have the answers to America’s education issues, but I do ponder what I could do to better prepare my special needs child for the Wechsler IQ test… only seems fair……


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